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brains.health

For about a year and a half, since around when we moved into this house, I've had inexplicable and unpleasant health weirdness. It manifests as dizziness and often tingling in extremities and my tongue, and seems to be at least partly related to exertion. And, once triggered, seems to happen off and on for a week or two.

And medical professionals have no idea what's going on. My heart function, lung function, and brain scans using an MRI all seem fine. And I can't really tell what causes it except, inconsistently, significant exertion.

However, it also seems to effectively pull the plug on my focus (both my eyes' ability to focus and my mental ability to focus), short-term memory, and awakeness. Indeed, it sometimes feels like a bit of a cutlery thief.

This means that, among other things, I rarely remember to actually post things to this journal, no matter how often I think of things to say, not helped by the distance between my office and the front door. (see: lack of short-term memory plus a cat, metahacker, galaneia, and a lovely garden with fish in it)

This, in term, means that I am not _using_ the fabulous brain space investigation that writing things down is for me. Almost certainly not helped by thesising, mind you. Nor by minimal time away from both my house and school in which things can occur to me that might otherwise not be.

So I hadn't really noticed the fact that another side effect of this stupid health thing, besides the fact that I no longer can just _do_ physical things that I should be able to do without thought (on top, mind you, of the similar effect that the tendonitis has on the use of my hands for much that is effortful), is that I'm trying to ignore the fact that it's terrifying me.

If I can effectively randomly be basically useless for a week or two, entirely aside from sleep problems and depression, what does this mean for, say, PhD. Or full-time work, especially if it requires driving. I think _this_ is why slacking off for a bit from my thesis makes me so distressed: part of me is _convinced_ that I'm not actually up to this, for reasons of my stupid health issues affecting my brain function. Part of me is terrified that I will be useless at any sort of career, since my health issue is effectively random, and does its level best to make me useless. I've frequently been having trouble focusing on my thesis, and begin to suspect that part of this is - in addition to donwanna - _can't_.

The only reason that I managed to actually write this tonight is because I spent the entire drive making myself remember to do this, and my entire greeting to metahacker was "I'm home, and I have to go write".

I wish to anything upon which one wishes that I knew what was going on with this. I hate being dropped down to useless mentally by - apparently - doing anything particularly physical. Especially since I _like_ being able to work in the garden or go for walks in pretty natural settings or even walk down to main street. And every time I do any of these things, there's a certain fear that I will then have an attack of dizzy/tingly/etc and be useless with absolutely no warning.

I mean, if I knew more about what triggered it than what _might_ trigger it, that would be a huge improvement. One thing that used to absolutely be true of me is that I could _do_ moderate exercise (go for walks, play in a garden, etc), and be able to rely that I could do it with no problem. That I wouldn't suddenly be away from home and not physically be able to get back home. And now? That's a fear of mine. And I know I've done more than I should more than once because this kind of thing happened. But how the hell do you plan for this without cutting out everything that _might_ trigger it? I can't live like that, you know?

I don't even know where to start investigating other possibilities (although jasra did mention the possibility of allergies, oddly. Certainly can't hurt, I guess), since so far the western medical profession is entirely without clue. And I'm so _tired_ of trying to figure things out...

Comments

( 19 comments — Leave a comment )
johnpalmer
Jun. 12th, 2012 02:14 am (UTC)
The dizziness and tingling touch on symptoms for migraines. I'm not suggesting that's what it is (especially not without the pounding headache) but I've found that my own problems seem to touch on migraines, too... I get some of the prodrome (the pre-migraine) effects, and *might* get a headache, but I also might just feel crappy. In my case, I know physical exertion can trigger it - it's the most reliable trigger. But I've had it a lot without exertion.

brynndragon
Jun. 12th, 2012 05:03 pm (UTC)
So, Scientific American had an article about migraines that described them as electrical storms near the brainstem - almost like a very focal seizure that impacted certain autonomic functions like vasodilation/constriction (which causes the severe pain) and the vagus nerve cluster of functions (hense nausea and sensitivity to light & sound), but sometimes it can have effects into the brain itself, in which case it generally hits the posterior lobe since it's starting from the back/bottom of the brain (so, visual artifacts/auras). Although in my case I'm guessing it also gets to the temporal lobe now and again, since I can get aphasia-like symptoms as part of my auras.

Let me think about this some more, it feels like a potentially fruitful direction of contemplation.
wispfox
Jun. 12th, 2012 05:17 pm (UTC)
Curious: does this mean that a migraine med might help? Does anything help, in your case?
johnpalmer
Jun. 12th, 2012 11:10 pm (UTC)
I'm taking a beta blocker, which is used (off label) to prevent migraines. My problems *feel* heart centered, and that's why I asked about beta blockers - I exercise (and feel fine while exercising, and immediately afterward) but then feel awful afterward. And the symptoms I have are symptoms that are correlated with a weak heart (except, in my case, they go away quickly - heart failure is usually persistent).

But some of my symptoms also point kinda-toward migraines. And I can get pounding headaches if I exercise *too* much - I'm just not stupid enough to do that any more :-).
wispfox
Jun. 12th, 2012 05:21 pm (UTC)
And actually, the initial episode which triggers the week or two of continued random dizzy/tingle _does_ involve a nasty - but not migraine level - headache.
johnpalmer
Jun. 12th, 2012 11:11 pm (UTC)
Nod. But migraines don't have to be severe. It's just, if they're not severe, well, people don't tend to go to the doctor about them. If you were a bit nauseous or dizzy, or light-sensitive, or smell sensitive, and had a headache that you felt was kinda like a migraine, but not as bad, the doctors would probably call that a migraine (just not a very bad one).
intenselaura
Jun. 12th, 2012 04:39 am (UTC)
*concerned*

Have they checked your thyroid?
wispfox
Jun. 12th, 2012 05:22 pm (UTC)
I'm pretty sure that they did initially, since it seems like everyone does that for everything nowadays.
alecto23
Jun. 12th, 2012 05:45 am (UTC)
I can understand why you'd be scared, that sounds really terrifying! However it is reassuring to know that they can't find things wrong with your heart, lungs and brain. Because although annoying not to know what it is, if it were one of those things, it could be really awful. Small consolation, I know!

I agree with jasra - in fact, the first thing that occurred to me when reading your symptoms and that they began when you moved into your current house is that it could be an allergy thing, or something about where your house is located. For example, is it near a power substation or something? Have you noticed feeling better when you spend time away from home?

Other possibilities that occur (and they may be totally different, but worth investigating if you are stumped) are migraines, vitamin B12 deficiency and underactive thyroid. http://www.nlm.nih.gov/medlineplus/ency/article/003206.htm
wispfox
Jun. 12th, 2012 05:24 pm (UTC)
Location doesn't appear to matter, no, sadly...

migraines was also suggested above; will talk to my psychiatrist about that possibility.

I believe that they tested thyroid at the time this first started being scary, as they seem to test it when anything weird happens.

B12 is possible. I took a multi a few days recently, and can't recall if B12 is in it. Didn't seem to have much effect, but I can't recall if B12 is one of the weird ones that doesn't go in multivitamins.
xiphias
Jun. 12th, 2012 05:36 pm (UTC)
B12 is usually in multivitamins, but it usually takes a few days to a week to build up to useful levels. And the trainer I work with at the gym said that, when he started taking B12, he actually felt MORE tired for a couple days before it built up, and it did make him feel better.
johnpalmer
Jun. 12th, 2012 11:13 pm (UTC)
I've also seen people singing the praises of sublingual vitamin B12 - claiming it absorbs better via the mucous membranes than from being swallowed.

Of course, B12 is a funny vitamin - it only works if you have a particular activation factor present (most people do - those that don't have something that I think is called "pernicious anemia")
alecto23
Jun. 13th, 2012 02:18 am (UTC)
Hmm. I can't remember, are you vego? Because B12 is one of those ones that vegos have a harder time getting through diet. Sounds like between that and the migraine possibility, you've got a couple of promising angles to research! And quite probably fixable too, more to the point.

Doesn't it seem less scary now? Good on you for mentioning it on LJ. Always less scary to have it outside your head, even without all the geek-fix-it people giving you suggestions. :)
xiphias
Jun. 12th, 2012 05:11 pm (UTC)
Hunh. That DOES sound terrifying.

I wonder if it's environmental, if it started when you moved into the house. . .
wispfox
Jun. 12th, 2012 05:18 pm (UTC)
Technically, it started while doing heavy lifting in order to move things around during prep for moving. However, at that point we'd already spent a fair bit of time preparing things.

That said, it doesn't seem to only happen at home.
xiphias
Jun. 12th, 2012 05:19 pm (UTC)
Well, it was an idea. . . anyway, it reminded me that I'd been thinking of writing up a post on How To Clean Up Airborne Toxins In The Home.
wispfox
Jun. 12th, 2012 05:22 pm (UTC)
Yeah. I mean, if I knew where to start, it'd help! I do appreciate the idea. :)
weegoddess
Jul. 16th, 2012 09:24 pm (UTC)
I'm catching up on things I tabbed when they were posted, to ask about later. Because I didn't want to let it slip down the sink. At some point, I'll start reading LJ again when stuff is actually posted. But we takes what we can musters these days.

How are things now?
wispfox
Jul. 17th, 2012 07:17 pm (UTC)
I've got an appointment with a neurologist, and am taking 400 mg B2 every day as per suggestion from my mom (due to recent study wherein that can reduce frequency and duration of migraines, which it did for my mom).

Past that? It hasn't happened recently, but that may not mean anything.
( 19 comments — Leave a comment )

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